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Perhaps in the years to come, we will have physicians who are more comfortable with the internet, and patients who are less in awe of their physicians. As I was growing up, physicians were people who were more like teachers, mentors, and authority figures. I am still uncomfortable about the next visit with my urologist and trying to not hurt his feelings since I think he is a genuinely caring person. But we can’t rely of physicians without supplementing that with our own research. Yes, people can come up with all sorts of imaginary illnesses, but we can also be proactive with some knowledge that physicians don’t necessarily have the time for. When I mentioned my yogurt due to the gout, his response was, “Well, try to eat less.” Now that I have looked it up. better advice would have been “Try to time your antibiotic so that it is between meals, preferably two hours after eating and two hours before eating. In addition, take some probiotic while you are on the antibiotic to help keep healthy bacteria in your stomach.” Ultimately, unless the error is egregious and they get sued, physicians don’t deal with the consequences of poor advice. I am sure he will be sorry I experienced the gout (unless he tries to blame it on something else), but he wasn’t the one how could barely walk for a week. Most physicians are great people, but they are not omnipotent or magic like we were taught years ago.
Keith
Thanks for your reply. I agree with you that doctors would have trouble knowing all the possible side effects of any particular drug. But since I had mentioned my gout diet to him, he might at least have suggested I check the side effects on the internet, or pulled up the PDR to see is there was any contraindication with gout. There seems to be a fairly cavalier attitude about the possible side effects of the medications they are recommending. Although I didn’t mention it earlier, I also injured my arm recently which I also believe to be a side effect of the medication. I thought it was just getting old, but was surprised to see it in the list of possible medication side effects. It could be pure coincidence that this injury occurred while on this medication, and would not have expected the doctor to know that this med can cause tendon tears in men over 60.
As you note, we must maintain our vigilance and not be intimidated about using the internet for information (because it will make us imagine all kinds of problems???). Ultimately, we are the one who have the time and investment to ensure our healthcare; physicians are hired help.
Mike
I am providing an update to my gout situation that I hoped I would never be writing, but I guess I am a slow learner.
A few nights ago, I awoke with what I knew was the start of a gout attack. Since I have been gout free for over a year, primarily from changing my blood pressure medications to reduce my uric acid, I was puzzled by the recurrence. My first thought was too many holiday sweets, since I still don’t eat much red meat or fish, rarely drink alcohol, and never drink sugary sodas. But I had a prostate inflammation and the urologist prescribed an antibiotic and a special diet. I specifically mentioned the gout since the diet excluded cherries and yogurt which I consumed daily since some believe it helps lower uric acid. What he didn’t mention is that antibiotics reduce the kidney’s ability to excrete uric acid. I think it is highly likely that I am experiencing a second episode of medication induced hyperurecemia with a different doctor involved. What I have learned from this are:
1. My kidneys are sensitive to medications which inhibit the excretion of uric acid. In the case of antibiotics, they also kill good stomach bacteria which could further exacerbate the problem. This sensitivity does not mean it is true for everyone, but appears to be true for me.
2. I cannot rely on physicians to take into account my health history when making treatment recommendations. Although I like both of the physicians and feel they are knowledgeable about their craft, they operate in a way which I have seen very commonly over the years. They look at what is in front of them, not what is all around them. The first doctor prescribed Allopurinol without even reviewing my blood pressure medications until I asked him to do so. The second doctor was informed of my gout, but didn’t think to mention that the antibiotic could be a problem and suggest some ways to mitigate the potential of a gout attack.It concerns me that I have now had a second attack, and this time it is in two joints; both the first and second joint of the big toe. It was so painful last night that I probably got no more than an hour’s sleep. I now realize that even though I brought the uric acid under control before, it can easily be disrupted if I become complacent and don’t check what is being prescribed for me.
I have an update on my high uric acid issue. To recap briefly, my uric acid level was 10.7, and my doctor prescribed Allopurinol. I didn’t like the potential side effects, and after doing my own research (which many healthcare providers discourage), asked for a change in my blood pressure medications. Based on a recommendation from Keith, I asked to have my blood test redone and just received the results. My uric acid went from 10.7 to 5.9 in three months. My blood glucose went from pre-diabetic to normal. In my case it appears clear that I had “drug induced hyperurecemia” as well as elevating my blood glucose. The main guilty party was 50 mg of HCTZ. For those with high uric acid and high blood pressure, you might want to take a look at your BP medications to make sure they are not contributing to the problem. It apparently is not something that physicians routinely consider. If high doses of HCTZ are the only option, then deal with the side effects, but otherwise consider alternatives.
Just found the link that might be helpful to people looking to buy a blood pressure cuff that is has passed testing by various US and British agencies:
http://www.dableducational.org/sphygmomanometers/devices_2_sbpm.html#ArmTable
They had no one else who was willing to do the web site, and it was quite an adventure since I had to teach myself HTML. Although still a self taught amateur, it did help me understand how difficult it is to organize large volumes of information. And I found that some of it comes down to opinion. A model that one person finds easy to maneuver through is confusing and complex for someone else.
Regarding the questions:
1. My doctor thought that retesting now would be too soon. He suggested we wait until the three month mark since we are working on several approaches including changing one BP med, reducing diuretic, losing weight, watching diet, and maintaining my exercise. As I have learned from this process, diuretics not only reduce fluid volume leading to higher concentration of uric acid, they also appear to interfere with the kidneys ability to remove uric acid. Although weight loss helps reduce uric acid, losing weight too fast can raise it so that has to be a juggling act. So waiting a bit seems reasonable.
2. Being able to do my own BP readings has been important for me. High blood pressure has been a long term problem, with my first diagnosis in 1982 when I was 170 lbs and played sports daily. A whole range of tests, including kidney scans, have never identified a cause. A decent electronic arm cuff is reasonable in price and seems to do a good job. The ones that go on the finger are not considered reliable. The readings I get are pretty comparable to what the doctor gets. During this transition period on meds, I take a reading several times a day just to see what is going on.Totally agree on keeping pain meds to a minimum and addressing the causes if possible.
Thanks for your reply Keith. I do understand that the herbs and spices are a small part of the big picture. Since my blood pressure medication was changed to losartan (which has been shown to reduce uric acid) in place of one which is associated with increased uric acid, I want to see what kind of effect that has. In addition, my diuretic was reduced and have increased my water intake. Reducing the diuretic has raised my blood pressure a bit, but I am still within a safe range. As you stated in your response to Breandan, medications have a trade off, and a slight increase in my blood pressure will be worth it if I am better hydrated and my uric acid is lower.
Regarding the herbs, the proportion of each is directly related to the taste. People won’t stick with it if it tastes bad. If you put on a pinch of salt and a huge amount of pepper, food will taste bad. Thyme has been described as peppery, so too much would probably not be good. I have looked at a number of Mediterranean mixes, and there might be two teaspoons of basil to 1/2 teaspoon of thyme. So correct proportions are probably as important was what is in the mix.
In my reviews of articles, I had not really thought about one for reducing uric acid and one for reducing inflammation, though that is an interesting notion. Mine were focused around two different tastes to provide some variety. But the idea of reducing inflammation would be appealing for me. Although I have only had one gout attack several years ago, I was told recently that I shouldn’t take NSAIDs. I have had reactions to three different NSAIDs, the latest a few months ago after a few days of a prescription NSAID, and the doctor said that I shouldn’t take any NSAIDs due to the potential of anaphylaxis, even from aspirin. It was recommended that I use acetaminophen which is a pain reliever but not an anti inflammatory. I have started using some tart cherry juice and perhaps that can be useful, but natural anti inflammatories would be great.
As far as the database, I would certainly be willing to help out, though I am a beginner in terms of trying to figure these things out. I would also be willing to provide input on the website itself if you are interested. It didn’t seem appropriate to comment on it before, but since you are making changes the amount of information does feel overwhelming. For three years, I managed a website for an animal rescue group and have some experience with trying to figure out how to organize a lot of information in ways that people can find it. It appears you are using WordPress and I am not familiar with their functionality since I was writing my own HTML and CSS code, but would be open to being a sounding board for ideas or providing comment on changes you are considering if that would be of any value.
Keith – I posted on your Facebook site. But you suggested to come here. I was asking if anyone had developed a homemade spice mixture that could be applied to food that included herbs that at least some people thought might be helpful in dealing with high uric acid. A search of this site and the internet generated information about individual spices but no mixture with proportions of each spice/herb. There are no miracle cures, but if something you would be doing anyway (seasoning your food) can make a contribution without causing any harm it seemed like it might be worth trying. I usually just use salt and pepper or grab some spices out of the cupboard, so might as well have a mix ready that might be helpful. I created two mixtures, a Mediterranean one and an Indian one. The Mediterranean included garlic, basil, oregano, cinnamon, parsley, rosemary, coriander, marjoram, thyme, nutmeg, and lemon peel. The Indian one included cumin, coriander, ginger, turmeric, dry mustard, cardamom, cinnamon, and lemon peel. My plan is to create a shaker of each of these and use them to season meats, rice/pasta, vegetables, and salads depending on what the food is and my mood at the time. Perhaps experimenting with proportions is the way to go or changing some of the ingredients. For example, I am not sure the cinnamon goes with the Mediterranean, but thought I might try and see. If there are any good herbs or spices that are missing they could potentially be added. Does this seem like a reasonable idea?
Thanks for your comments Keith. I couldn’t find the exact article regarding diet, but you said something similar to what you noted above; eat a healthy balanced diet and don’t get too caught up in each little detail. Most sites seem to agree that mushrooms are bad, so that is really the only thing I am cutting out since I don’t eat organ meats, rarely drink, eat little red meat, and don’t drink sugary drinks. I do eat canned tuna, but am going to limit it.
To help loose weight, I started on a popular calorie and nutrient counter and have lost 8 lbs. My nutrient mix was 50% carbs, 29% fat, and 21% protein which was almost exactly the recommended proportions according to the app. The carbs may be a bit higher than recommended for gout, but they are primarily complex carbs so not worrying about that at this point. The weight loss has been over a period of two weeks and am watching that it doesn’t come off too fast.
My exercise is regular but typically not strenuous. It is primarily cardio, but some limited weight machines perhaps twice a week. I track my steps through my cell phone and they run 6,000 to 10,000 a day. I don’t get concerned if I have a busy day and can’t hit the 6,000 target, but most days I do.
I am hoping with the changes I have made I can get the uric acid down. I am going to be talking with my doctor about getting another blood test within a month or so.
